The French Rett Syndrome Association, founded in 1988, is firmly established in the French associative landscape. It represents more than 600 children and adults affected by Rett syndrome in France, Belgium, Switzerland and Luxembourg.

New hopes in terms of research have strengthened the families in their desire to gather around an association that is unanimously recognized and that knows how to maintain homogeneity and coherence in its actions.
This is true for all European countries.

The policy of our associations is based on permanent axes, such as support for families, and all kinds of efforts are being made to increase their representativeness and effectiveness.

Our European associations do not cease to mobilize so that no one affected by this syndrome remains without a diagnosis. The actions carried out for more than 30 years have the objective of improving the quality of life of these people.

In order to pool, share information and pool our struggles, the AFSR is honored to organize the 7th European Congress of Rett Syndrome on October 7 and 8, 2023. This event is entirely dedicated to Rett syndrome and will take place in Marseille.

We invite all of you, parents, relatives or caregivers of a person with Rett syndrome but also health professionals, scientists, representatives of European and international associations, staff of specialized centers for children and adults, and students, to attend the event.

We look forward to welcoming you.

Julien Fieschi

President of the AFSR